1. Find a Support Group
ALS is a life-changing diagnosis. Finding a support group early on can help you learn more about your condition and what to expect. Support groups can also offer the mental and emotional support that others cannot simply because people in these groups either have ALS or know and care for someone who has ALS. Support groups can help you when you are feeling anxious or depressed and when your symptoms are progressing. They can also provide valuable information and assistance to your friends and family. Talk to your doctor about local support groups in your area.
2. Stay Informed
Staying informed about ALS and the newest research and therapies can help you make appropriate choices for yourself and get the care you need. Learn all you can about your condition so you can educate your loved ones on what to expect and how to best help you. Let your family and friends know what you need now and what you may need in the future. Find information on the medical care devices that are available for those with ALS. This can help you to understand your options for items that can assist you now, and help you decide on the appropriate time to begin using new devices as your symptoms progress.
3. Obtain Adequate Nutrition
Ensure that you obtain adequate nutrition to keep your body strong and healthy and help to ease some of the symptoms of the disease. Eat healthy foods that provide enough nutrients to help keep your immune system strong and protect your body against other health issues that can tax your strength and energy reserves. Getting adequate nutrition can also help to support a positive mental outlook. Take a multivitamin and additional antioxidants daily, especially when you may not eat as healthy as you should.
4. Stay in Touch With Your Doctor and Physical Therapist
Your doctors and physical therapists can be some of your greatest allies and help you through difficult periods. These professionals can give you valuable information about procedures or equipment that can help make your life easier. They can also help you make decisions regarding when to obtain such devices so you are prepared and aren't waiting to receive them or struggling to understand how to use them while your symptoms progress. Stay in touch with your doctor and physical therapist and keep scheduled appointments.
5. Live Your Life!
While there are no treatments or cures for ALS at this time, remember that you are still alive! Live your life! Don't hide from people who care about you and want to help you. Fight off depression and anxiety by staying in touch with family and friends who love and support you. Take the time to do things that you've wanted to do but have put off. Take a cruise. Enjoy a picnic in the park. Appreciate the beauty of a sunset, or even paint a picture of one!
