1. Don't Isolate Yourself
The diagnosis of ALS is a life-changing event. The emotions you feel are powerful, but don't isolate yourself. Spend time with those you care about and let them know what you are feeling and what fears you may have. Find an ALS support group in your area. Support groups can be of invaluable assistance to those newly diagnosed with ALS. They can answer a lot of the questions you may have and be a source of inspiration. Spending time with loved ones can also help to reduce stress, which can impair your sleep and disrupt your immune system. Call people you care about, especially those who you know will help you through difficult times.
2. Stay Active
Continue to do many of the things you love to do for as long as you are able. Don't overexert yourself, but talk to your doctor or physical therapist if you are finding it difficult to do the things you used to enjoy. There may be assistive devices available that can help you. Staying active can help strengthen muscles that aren't affected by ALS, and can help you to keep a positive outlook as your condition progresses. Find people to share the activities you enjoy.
3. Educate Yourself
Educate yourself about ALS. The more informed you are about your condition, the more power you have, mentally and physically. Learn about therapies that can help you now or in the future. Prepare yourself with information for the day you might need additional help and don't wait until the last minute to get it. Educate those around you as well. Talk to your friends and family about what ALS is and the sort of support you need now or will need in the future. Talk to your doctor or people in your support group about new therapies that might be helpful for you.
4. Express Yourself!
Care for yourself by learning to express yourself and your needs. Often people don't understand what it is you are going through and what kind of support would be most helpful for you. Speak with a counselor. Help yourself to be able to talk openly and honestly with people about what you need and why. Your friends and family love you and want to help you the best way they can. Honor them and respect yourself by letting them care for you and telling them what help you need when you need it.
5. Live, Laugh and Love!
Despite your diagnosis, you are alive! Do some of the things you have always wanted to do but always put off; take a trip, watch a meteor shower or write a children's book! Laugh with loved ones over silly jokes or movies! Share special moments with people you care about and who love you. And always remember that you are a valuable, talented human being who has many ways to contribute and find fulfillment.
