1. Prevent Complications From Hypoglycemia
Because it is caused by a complex set of genetic abnormalities, there is no known way to prevent Russell-Silver syndrome from occurring. There are some steps, however, that you can take to minimize the effects of the disorder on your child and prevent potentially dangerous complications. One of the most dangerous complications of Russell-Silver syndrome and small gestational age in general is hypoglycemia. Hypoglycemia, or low blood sugar, can impair your child's brain function and cause coma or death (in rare cases).
Your child will require a high caloric intake to prevent hypoglycemia and catch up in growth. She should be fed frequently throughout the day and awakened at night to eat. Extra glucose may be needed in your child's diet, particularly just before bedtime. You should carry snacks and emergency glucose gel with you at all times. Ketone sticks can be used to test your child's urine at home and monitor glucose levels. If you are unable to get your child's glucose levels controlled, feeding through a gastronomy tube may be required.
2. Psychological Counseling and Physical Therapy
Children with Russell-Silver syndrome can develop low self-esteem and/or depression because of their appearance. If treatment is not given in time or is unsuccessful, they can be much shorter than their peers. In some circles, RSS is considered a form of dwarfism. Psychological counseling is recommended to deal with negative feelings. Additionally, physical therapy may be needed to help your child catch up to his peers physically. Lack of muscle mass can inhibit certain motor skills, and that should be addressed.
3. Early Intervention for Learning Disabilities
Despite having normal intelligence, your child with Russell-Silver syndrome may experience learning disabilities like attention deficit disorder (ADD). Early intervention is recommended to prevent later problems in school. All states offer developmental services for children under 3 years old. After that, the school district takes over these services. They are not based on your income. Instead they are based on the needs of your child.
