1. Determine the Right Schooling Environment
In some cases, a child with Huntington's disease may be able to remain in a public school system, and the familiarity of the surroundings can be helpful to him. In other situations, however, your child may need the individual care of a special education program. Once Huntington's disease has been diagnosed, make an appointment with your local school to discuss options. The Americans with Disabilities Act requires public schools to provide a proper outlet for your child. If you don't feel a public school environment is the answer, you can look into a private school for special-needs children or home schooling if that is appropriate.
2. Be Prepared to Change the Education Plan Regularly
Huntington's disease is a progressive condition, which means you will need to adjust your schedule and planning as you move forward. What works for one school semester may not work for the next, as growing cognitive difficulties make certain tasks more difficult. Whatever education plan you have, you should regularly evaluate it with your child's teacher and change it at least once a year to fit your child's capabilities.
3. Make Sure Teachers and Administrators Understand Huntington's Disease
If you are using a private tutor or enrolling your child in a specialty school, the teachers should be well versed in the specifics of Huntington's disease. If you are enrolled in public school, however, they may not understand the needs your child has. Talk to your child's teacher and any pertinent administrators about Huntington's disease, and make sure they have a good idea of what it entails. If they are prepared and educated about it, they can adjust to unforeseen circumstances more readily.
4. Focus on Issues Besides Just Education
A school environment must involve more than just education for a child with Huntington's disease. The facilities must be set up to accommodate him with proper seating and adequate transportation to and from the school. If feeding is an issue, the school should provide special meals that meet your child's needs. Bullying and social acclimation may be concerns, as well as behavioral control if your child grows frustrated or is unable to express himself. When planning for your child's education, cover every area of concern with the school and make sure it is set up to accommodate all of his needs.
