1. Minimize Damage to Bones
When Fanconi syndrome is caused by a treatable condition such as Wilson's disease, it can subside when that condition is treated. Likewise, if Fanconi syndrome is caused by heavy metal poisoning or a reaction to another substance, avoiding that substance can cause Fanconi syndrome to go away. If the underlying condition that causes the Fanconi syndrome is not treatable, however, the symptoms can still be managed on an individual basis. One of the major symptoms of Fanconi syndrome is damage to the bones. Bone damage in children results in rickets, and in adults it is called osteomalacia. Vitamin D supplements can help to prevent these bone diseases from getting worse, and in some cases can help restore some bone health. Phosphate supplements are also used to treat bone damage and prevent further bone damage from Fanconi syndrome.
2. Replace Electrolytes in the Body
Fanconi syndrome causes the body to excrete valuable electrolytes such as potassium, phosphate, magnesium, bicarbonate and calcium in the urine. These electrolytes manage blood acidity, regulate hydration of the body and provide other crucial functions for the body. Replacement of these electrolytes is an important part of managing Fanconi syndrome. Talk to your doctor about the appropriate formulation of electrolyte supplements for your child. These supplements should always be taken under strict medical supervision, particularly by patients who suffer from Fanconi syndrome.
3. Join a Support Group
Most of the main conditions that cause Fanconi syndrome, including cystinosis, galactosemia and Wilson disease, have support groups that you can join either in person or online. These support groups allow parents of children with these disorders to compare notes about treatment and management options and find understanding in common experiences. There are also groups for adults with diseases that cause Fanconi Syndrome and those with kidney failure or those in the process of kidney transplantation.
