1. Enter Physical Therapy
A physical-therapy program can improve the mobility of Friedreich's ataxia patients and help them learn to manage everyday tasks, like getting around in their homes and going to school or work. Friedreich's ataxia is a genetic disorder in which your nerves lose some of their insulation, or myelin. Myelin helps nerves conduct impulses throughout your body, and when this substance becomes too thin, your nerves can't do their job effectively. The result of this damage is muscle weakness and loss, as well as a lack of coordination in your arms, legs and trunk area.
Your doctor can refer you to a physical therapist, who will teach you ways to compensate for the movements you have trouble performing. You'll probably do some stretching and simple exercises to maintain the amount of muscle you do have for as long as possible. Most people who have this disease eventually need to use a wheelchair, but it could be 10 to 20 years of steady progression or decline before this happens. Other ambulatory aids, such as walkers and canes, may help you get around easier. Your physical therapist will be able to recommend products she feels will be beneficial for you.
2. Pursue Speech Therapy
The nerve and muscle damage you have sustained from Friedreich's ataxia may make it difficult for you to talk and be understood by others. Find a speech therapist in your area--your doctor or local hospital will have a list of candidates--who can assist you with your verbal communication.
3. Diagnose and Treat Associated Medical Issues
Manage your health by scheduling routine screenings for heart disease and diabetes. These illnesses are commonly found in people with Friedreich's ataxia, and can be potentially life-threatening if left untreated. If you are diagnosed with an arrhythmia, heart disease or diabetes, follow your doctor's treatment plan to keep yourself in the best health possible. Many of these conditions can be controlled by medications and changes in your diet.
4. Join a Support Group
A support group for people with genetic disorders or neurological impairments can provide an outlet for the emotional stress you probably feel on a daily basis when dealing with your condition. A support group of this kind is a safe place where you can feel free to voice your concerns, hopes and fears with people who are going through similar issues. Making some peace with your disease emotionally can be beneficial to your physical health.
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