Research by Children's Hospital Boston suggests that parents who receive a prenatal diagnosis of Down syndrome, as opposed to those who find out at birth, are generally happier, as they are given the necessary time to prepare physically and mentally for the change that will occur in their lives. If you are given this type of diagnosis, don't panic or despair. Instead, take the time you need to prepare and educate yourself so that you know what to expect, and so that you can properly care for your Down syndrome baby.
Step 1
Know that a diagnosis of Down syndrome is not your fault. No parent can do anything differently to change the diagnosis, so don't spend time dwelling on how you could have prevented what is the most common chromosomal condition, according to Down syndrome researcher, Dr. Brian Skotko. Instead of worrying what you could have done, look forward to the future.
Step 2
Align yourself with the best obstetrician and pediatrician possible, preferably those who have dealt with Down syndrome pregnancies and newborns before. You'll need a team of doctors and therapists that you trust to help you make informed decisions about your baby.
Step 3
Find a local support group so that you can speak with other parents who have been in a similar situation. Downsyndrome.com offers a complete social networking site made up solely of those whose lives are affected by Down syndrome. It's a good place to start to connect with others, find a support system and meet new people.
Step 4
Avoid doing idle research on the Internet that is not from reputable sources. If you plan on researching on your own, stick to websites and organizations like The National Down Syndrome Society and The National Association for Down Syndrome. There you'll find accurate information that is helpful to your preparation for a Down syndrome baby. There are too many websites out there that are not reputable, and they may give incorrect information that can scare and worry you.
Step 5
Decide on what modes of therapy you'd like to try before the baby is born. Occupational therapists are on hand to help with beneficial physical therapy that can help with Down syndrome babies' weak muscle tone and to facilitate important milestones. Choose how much intervention you'd like with your Down syndrome child, if at all, so you can begin therapy as soon as your baby is ready.
