Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease, is a neuromuscular disorder that damages the sufferer's ability to control voluntary movements. Eventually, this progressive illness causes walking, talking, eating and breathing difficulties. Numerous books have been written to provide information and support to those suffering from ALS. You can buy these books in a bookstore or online, or borrow them from your library.
"Amyotrophic Lateral Sclerosis: A Guide for Patients and Families"
"Amyotrophic Lateral Sclerosis: A Guide for Patients and Families," written with contributions from several authors and edited by Hiroshi Mitsumoto, M.D., was published in 2009. Considered a primer on the disease, this book features discussions of symptoms, treatment, rehabilitation, nutrition, wheelchairs and life support. Clinical trials for ALS are explored and alternative therapies are described for additional treatment options.
"Amyotrophic Lateral Sclerosis"
"Amyotrophic Lateral Sclerosis" was published in 2004. It is part of the American Academy of Neurology Quality of Life Guide Series, created to give patients information about the ALS disease's progress. Treatments that can improve symptoms and, therefore, the quality of life are explored, along with clinical trials that are designed to find new drugs. Nutrition, speech, behavior, walking, communication, and health insurance issues are all addressed in this comprehensive guide. The authors, Robert G. Miller, M.D., Deborah Gelinas, M.D., and Patricia O'Connor, RN, describe the resources available for patients from the ALS Association and the Muscular Dystrophy Association. Miller is considered a national expert on amyotrophic lateral sclerosis, making this book an authoritative guide to ALS.
"I Choose to Live: A Journey Through Life With ALS"
For a different perspective, consider "I Choose to Live: A Journey Through Life With ALS," published in 2002. Written by William Sinton, a patient with the disease, this book provides practical advice on dealing with ambulation, travel, breathing, swallowing and other issues that must be faced. This book is created to inspire those with ALS to make the most of life and work around their symptoms. The author's candid retelling of his experiences with disease progression allow the reader to glean ways to face the future with courage and humor.
"River of Hope: My Journey With Kathy in Search of Healing From Lou Gehrig's Disease"
"River of Hope: My Journey With Kathy in Search of Healing From Lou Gehrig's Disease" was written by David Tank, the husband of a woman with ALS. This 2008 book describes a journey through a health care system that they felt did not do justice for the patient and outlines the ways they chose to fight the disease. Toxins in the environment and food are explored as well as alternative remedies for ALS.
