CURE states that when a person has had two or more seizures that have not been provoked by specific events such as trauma, infection, fever or chemical change, he is considered to have epilepsy. More than 3 million persons are affected by epilepsy in America. This condition can be difficult to live with; if it develops later in life, it necessitates lifestyle changes. For persons who are affected from birth, it provides a challenge to caregivers. It is important that persons affected by epilepsy know about the resources available to them and where to look if they have questions.
American Epilepsy Society
The American Epilepsy Society focuses on education of providers and research on the treatment and prevention of epilepsy. The website provides a search for a doctor, which allows you to find one in relevant specialty areas by zip code. The site includes frequently asked questions about post-traumatic epilepsy. You can contact staff with questions about epilepsy through email or by telephone. An epilepsy education program that provides different modules online for providers can be found in the Professional Development section of the website. This website has up-to-date, reliable and useful information for people affected with epilepsy.
American Epilepsy Society (AES)
342 North Main Street
West Hartford, CT 06117-2507
860-586-7505
aesnet.org
CURE
The Citizens United for Research in Epilepsy (CURE) is a nonprofit organization that raises money for research and provides health awareness regarding epilepsy. It has links to epilepsy facts on its website, recent news and current events regarding epilepsy and publications that you can download. The site offers research updates and grant applications. The State of the Union Epilepsy report, an assessment of the research community's efforts in working toward a cure for epilepsy, can be accessed on the front page of their website.
CURE
730 N. Franklin Street, Suite 404
Chicago, IL, 60654 |
800-765-7118
info@CUREepilepsy.org
Epilepsy Foundation
The Epilepsy Foundation's website provides an extensive collection of educational information and resources, such as first aid information and treatments, useful for families and caregivers. It provides online newsletters regarding wellness and lifestyle, children's, teens and women's issues. It offers free brochures about epilepsy and information about the advocacy efforts it is championing.
Epilepsy Foundation
8301 Professional Place
Landover, MD 20785
800-332-1000
EPILEPSYFOUNDATION.org
Global Campaign against Epilepsy
The Global Campaign against Epilepsy started in 1997 as a collaborative effort among the World Health Organization, the International League against Epilepsy, and the International Bureau for Epilepsy. The Campaign provides education, information about treatment, diagnosis and care. There are reports and publications regarding the scope and epidemiology of epilepsy around the world, diagnostic services, public health information, annual reports and other information.
World Health Organization
Avenue Appia 20
1211 Geneva 27, Switzerland
+ 41-22-791-21-11
who.int/mental_health/management/globalepilepsycampaign/en/index.html
