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Share your LIVESTRONG.COM Story

Posted by susysez | October 19, 2009 | 5 Comments

Hello LIVESTRONG community,


Have you seen success using LIVESTRONG.COM?

We want to hear your story!

Please tell us how LIVESTRONG.COM has had an impact on your life.

 

We are looking for members who have success stories to share from these areas of the site:

 

Weight Loss using The Daily Plate

Fitness with the help of a Dare or a Group

Diabetes Management using The Daily Plate

Quitting Smoking using the Dare to Quit Smoking

Are you a Cancer Survivor who is inspired by Lance’s story

Addiction using the help of a Dare or a Group

Recipe Maven

Running/ Cycling using LOOPS

Dieting using the Daily Plate

Drinking Water using the Daily Plate or the Dare to Drink more water

Mobile Calorie Tracking have you seen success using the BlackBerry or iPhone application

 

Write to us here:


Please be sure to put My Story in the subject line.

 

Be sure to include your user name and email address for the site, along with your contact information including city and state.

 

We look forward to hearing from all of you!


 

Best,

Susysez

 

 

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Austin Here We Come!

Posted by Krisserin | October 16, 2009 | 0 Comments
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Six members of the LIVESTRONG.COM team will be going to Texas next weekend to participate in the 2009 LIVESTRONG Challenge Austin.

Help us meet our fundraising goals by donating money for our team to the Lance Armstrong Foundation.


Content Editor Krisserin Canary, Senior Marketing Manager Christine Fleming, Product Manager Serena Burton, SEO Manager Preeti Dalwani and Community Manager Susy Sedano.

We'll be running and cycling to help fight cancer. Help us make a difference by lending us your support.


Thank you all for your support!!!
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Next year's Tour de France will take place in the Pyrenees in celebration of the first time the tour passed through the mountains 100 years ago.

In 1910 the tour passed through four of the most daunting Pyrenean Passes -- Peyresourde, Aspin, Tourmalet and Aubisque with the Tourmalet, one of the toughest climbs in cycling to be scaled twice.

The 2010 Tour will start in Rotterdam, travel through Brussels and will spend the rest of the route mostly in France. 


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Lance will be racing in the 2010 Tour with team Radioshack.


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I recently attended the USC Body Computing Conference, which was hosted by Dr. Leslie Saxon, Professor of Clinical Medicine at the USC Keck School of Medicine.

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That's me with Ed Saxon, producer of films such as "Fast Food Nation" and "Farlanders".

Dr. Saxon's speciality is in Cardiology, and she deals often with implanting devices, such as pace makers and defibrillators. Many of these devices have networking capabilities that allow doctors to monitor the health of their patients while they are away from the office. Dr. Saxon's goal is to empower patients by giving them access to personal health information, so they can make contributions and participate in their health care decisions. When speaking of implanted devices she said, "I don't know what's more yours," than the information that device transmits.

Patients rights to access their health information was a huge topic at the conference, stemming from an article Dr. Saxon recently wrote in the Huffington Post titled, "Owning Your Health Information: An Inalienable Right."

And she makes very valid points. I've never seen the contents of that mysterious file with my name on it. I can't check what my blood pressure was the last time I visited the office, or even how much I weighed.

Dr. James Mault, who is the director of Health Solutions Group, Microsoft Inc., responsible for Microsoft's Health Vault, made a very clear example. He asked the audience to raise our hands if we knew that we could track a recent credit card purchase online, and nearly 80 percent of the room raised their hands. Then he asked us to keep our hands up if we could go online and look up our cholesterol records--there was only one individual with his hand still raised.

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Dr. James Mault on patients' right to access their health records online.

So what I want to know is:

Do you want access to your health records online?
Do you think it is your right to own that information?
Are you surprised that we don't already have access to our records?
What are your concerns?

Sound off in the comments.




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RadioShack is selling a special edition of "Comeback 2.0, Up Close and Personal" by Lance, with photos by Elizabeth Kreutz.

 

The book chronicles Lance's first year back to professional cycling with a first personal photo-journal and exclusive photos from the 2009 Tour de France.

For a limited time, $10 of every book sold goes to the Lance Armstrong Foundation. That's up to $500,000 going to support the fight against cancer.

 

Visit RadioShack to learn more about the book, and what you can do to join the fight.

 

 




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Drew Carey has just upped his ante and I am not talking about poker.  It began with a 25k bid for the name @drew which is currently on auction by cancer patient Drew Olanoff. Carey upped his bid to 100k if his current Twitter, @drewfromtv, reached 100,000 followers. In recent news reported by CBS, Drew Carey offered to donate 1 million dollars to the LIVESTRONG foundation if he could reach a million followers on his Twitter by the end of the year.

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The bigger story is of Drew Olanoff. On May 20th, Olanoff was diagnosed with Hodgkin's disease. Olanoff took action and formed the Blame Drew's Cancer group partnering with LIVESTRONG.  Noticing the special circumstance of his four letter Twitter name, Olanoff tells Mashables.com that he "saw an amazing opportunity to use his coveted Twitter name to raise funds for charity."

If you have a Twitter, be sure to follow Drew Carey on Twitter @drewfromtv.

Get more information on Hodgkin's Disease.


 

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Gene Found for Chordoma

Posted by gpak86 | October 7, 2009 | 0 Comments
Natural Genetics published a study this week annoucing the discovery of a gene linked to familial chordoma.

Investigators at Duke University and the National Cancer Institute found that duplication of the gene brachyury is a cause of familial chordoma.

A recent discovery of a familial gene connection with the brain/spinal cancer known as Chordoma has shed light on a 14 year research conducted by Duke University and the National Cancer Institute. Chordoma is a malignant bone cancer that forms in the skull base (head) and spine. Nearly 300 are affected in the U.S. alone and although it affects men more frequently than women, anyone at any age can be diagnosed with the cancer. 

Despite the breakthrough in the research, the new discovery disrupts past known facts on gene related cancer. While most inherited cancer is due to a gene deletion or mutation, the new Chordoma gene is a duplication of a gene known as Brachyury.

Read the full report here.

Get more information on Chordoma by visiting the LIVESTRONG.COM Chordoma Topic Page.
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Michelle Obama in Prevention Magazine. Image courtesy of Prevention.com

In a recent interview with Prevention Magazine, Michelle Obama talks about her love of pie, and how a well balanced lifestyle leads to a happier life. 

Who knew that the first lady woke up at 4:30 a.m., not to go to the office, but to work out? What started out as a way to avoid the first feeding for her first child has become a daily routine for the First Lady.

Obama talked about her love of pie when asked if moving into the White House has changed her diet, "Overall it's good, but there are some great bakers here. I'm not complaining, because I live in the White House, and it's really nice here. But if you like pie, it will be there--always--at every meal (laughs). So for me, it's about setting up new boundaries. I had some challenges with that, but I'm balancing out."  
She tries to impart her healthy eating habits to her daughters as well. When one her daughters ask for a slice of pie, she asks if she'd had one the night before, "she'll come to the conclusion that, you know, you're right, I shouldn't eat pie every night."

Read the full article at Prevention.com.
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DietTribe on Lifetime Television is a new kind of dieting show.

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Unlike other shows which take individuals out of their comfort zone for weeks of diet and nutrition training, DietTribe and host/trainer Jessie Pavelka take five friends and teach them how to exercise and make healthy lifestyle choices.

The idea of getting five friends together for a reality show really intrigued me. When you think about it, it's the same concept we're trying to accomplish at LIVESTRONG.COM. Get a community of people together who want to change their lives for the better, and give them the tools and support to make healthy lifestyle decisions. I wanted to learn more so I called Jessie and chatted about the concept of the show, and his theory behind healthy exercise and nutrition habits.

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Photographed by Bradford Rogne

Krisserin: I know from personal experience, how hard it is to motivate yourself to get to the gym, especially when there is no one there to hold you accountable, which is why I really like this idea of getting five friends together to work out. Do you think the group dynamic helped the women on the show lose weight?

Jessie: Most definitely. It's like in sports when you have a team—you have five friends who all share the same goal, working together to lose weight and supporting each other. Support is huge in the gym and even at home. If you have a spouse or a roommate dedicated to making healthy lifestyle choices, you’re less likely to go home and binge on whatever you have in the fridge. 

Krisserin: Was there anything about the group dynamic that hindered their progress?

Jessie: Well, with anything it has its good and its bad. These women have known each other for a long time—and when they get to the first weigh-in they do great. They're all pumped and excited and they drop a lot of weight. But then after a while they start getting complacent. They think they're doing great and they don't have to work as hard. That's when all their bad habits come out and everything gets harder.

If one of them is having an off day, the rest of the women have to decide whether or not they want to join the pity party, or continue to work hard.

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Photographed by Bradford Rogne

Krisserin: Speaking of complacency, the first season was 90 days, and this time around it is 120 days. Do you think that's a manageable amount of time for a regular person to maintain a stringent diet and exercise regime? I feel like a lot of us after a month would just figure, "I lost 10 pounds, that's good enough."

Jessie: A lot of people go through the habit of gaining 10 pounds and then losing 10 pounds. It's like they enjoy being in a constant state of chaos.  

Krisserin: I don't know, I just think 120 days is a really long time. I'd be really hard for me and I'm assuming most of the women on the show have never worked out with a trainer or seen a nutritionist?

Jessie: You'd be surprised. A lot of overweight people know more about nutrition and dieting, because they've tried everything. Some of them would be telling me things and I'd be like, "How do you know that?"

Krisserin: "And why aren't you doing it?"

Jessie: Exactly. But I think 120 days is totally doable—because we're teaching them how to create healthy habits. All of the women take what they learn and do it at home afterward the show is over.

Krisserin: I noticed on your profile on Lifetime, you said the excuse you were tired of hearing was "I can't." What would you say to people who don't have you there to help them in the gym when they get to the point where they feel like they can't. 

Jessie: I have a joke I tell the girls, I say, "I can't never could." If you keep telling yourself you can't, you're just making it harder for yourself. These women keep saying "they can't" during the workouts but they keep on doing them. So in the end, they still end up doing the work but they waste a lot of time and energy telling themselves they can't. 

Krisserin: What role did nutrition play on the show, and what do you think is a healthy attitude toward food?

Jessie: Some people eat to live and others live to eat. The thing about diets is that they are temporary and extreme and most cause burn-out syndrome. After a while, people get tired of making good decisions. You have to find a diet that you find enjoyable and that allows you to have the bad snacks that you love now and then. Depriving yourself is setting yourself up for failure. Everything in moderation, that's what Aristotle said.

Krisserin: That's the way I feel—If I don't have my In-n-Out burger every once and a while I'm not a happy person. So I have to ask, what foods are your guilty pleasure? You're from Texas right? What about Queso dip?

Jessie: That's right, I'm from Corpus Christie, Texas. I love queso dip, but I grew up eating Oreos, they're probably my favorite bad snack. And I love dark beer, like Guinness.

Krisserin: What about alcohol? I don't think people understand how many calories they're consuming when they go out and have two or three drinks.

Jessie: I say if you work hard during the week and eat well, there's no reason why you can't go out with your friends on Friday and Saturday and have a few drinks. Just as long as you use some self control—don't have too much to drink so that you're too hungover the next day to make it to the gym.

Krisserin: Well, I love the idea behind the show. I don't see why more people don't create workout groups with their friends.

Jessie: Totally—and if you don't have money to hire a personal trainer you could split the costs between five people and it makes it totally affordable. It's great even if it's only once or twice per week.


I look forward to talking more with Jessie about the DietTribe, and different ways to create healthy habits in the gym and at home. 

You can catch the Season 2 Premiere of DietTribe at 9.p.m (EST), Friday, Oct. 2 on Lifetime.

Get more info about DietTribe or learn more about Jessie by visiting JessiePalveka.com.

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Happy LIVESTRONG Day!

Posted by Krisserin | October 2, 2009 | 0 Comments

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Dear LIVESTRONG Friend,

Today is LIVESTRONG Day.

Please read this message from Lance:

Thirteen years ago today, my doctor told me I had advanced testicular cancer. What most people don’t know is that at the time, I didn’t have health insurance. In the following weeks, I received letter after letter from the insurance company refusing to pay for my treatment. I was fighting for my life—but also for the coverage that I desperately needed.

The legislation currently being debated in Congress is not just words on a page—for many cancer survivors, it’s a matter of life and death. Now, as this debate enters crunch time, I need your help to ensure that what happened to me doesn't happen to any other American:

http://www.livestrongaction.org/campaigns/healthcare

No matter what side of the healthcare debate you're on, I believe we can all agree on two things:

No American should be denied health insurance coverage because of pre-existing conditions.

No American should lose their insurance due to changes in health or employment.

Will you sign the LIVESTRONG Action petition to make sure any legislation includes these two critically important reforms? We’ll deliver these to Capitol Hill this month as the debate reaches its climax and make sure our voices are heard in the debate:

http://www.livestrongaction.org/campaigns/healthcare

When I received my diagnosis, I was between cycling contracts. My new insurer used the diagnosis as a reason to deny coverage after the new contract was signed. Fortunately, one of my sponsors intervened. At their insistence, I was added to their insurance company and was able to continue my life-saving treatment. If my sponsor, a powerful company, had not gone to bat for me, I may not have made it.

I was lucky. We can't rely on luck to ensure coverage and treatment for the millions of Americans affected by cancer. Some cannot get coverage because they've already been diagnosed. Others get calls from their insurance companies saying they have been dropped. It happens all the time—and it's unacceptable.

Every year on LIVESTRONG Day, we come together to take action for a world without cancer. In the U.S., a critical step is to make sure cancer survivors can get and keep their health insurance.

It has been 13 years since my diagnosis, but in some ways, not much has changed. No person should have to worry about health insurance while battling cancer. That so many do is an outrage, and we must speak out.

Please sign the petition and forward it along to your friends and family:

http://www.livestrongaction.org/campaigns/healthcare


LIVESTRONG,

Lance and the LIVESTRONG Action Team

P.S. Don’t forget today is LIVESTRONG Day. There are more than 1,100 events taking place to raise awareness about cancer all over the world. View our interactive map to see events in your area:

http://www.livestrongaction.org/map

 

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