Fibromyalgia Group Group

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About This Group

This is a group for all those out there suffering from Fibromyalgia and/or Chronic fatigue syndrome and know how hard it can be to lose with these conditions

October 20th, 2008

Newbie!

posted by Brijen17 on 7:10 am

Hi everyone!  I'm new to TDP, but unfortunately not to Fibro =/  My mom also has Fibro, and I've been suffering noticeably for about 4 years now.  I'm 21, so I'm fairly young to be dealing with Fibro, but I'm also very active, so I have good and bad spells.  I'm working on my Master's as well as working full-time in Marketing, so I don't have much time for feeling crappy (or at least not for acknowledging it!); I found out last week that I have Mono, which is probably one of the worst things to be paired with FMS.  Other than the lack of appetite (helpful on the weight-loss end of things), the fatigue and headaches are what have been affecting me the most.  I have been doing my best to eat at least some protein each day (when I say lack of appetite, I mean "no" appetite).  I am down 5lbs. in the last week and a half though!  What are some of the "methods" or treatments everyone on here uses to deal with Fibro?

Comments

by cheyenne1029 on Oct 20, 2008 at 10:21 am

Welcome!  This is such a wonderful & supportive group. 
Working full time and going to school!  WTG on that!  I sometimes feel like just working might be the death of me, lol!  Mono is the last thing that someone with fibro needs to get.  I certainly hope you can kick that out of your system asap.
My most helpful fibro treatments are chiropractic care, diet and a supplement called Corvalen. 
You need to make sure that the chiropractor treats fibromyalgia specially as we are very sensitive and can be hurt easier than those without it. 
Corvalen is a natural sugar that your body produces called D-Ribose.  There is a theory that those with fibro do not produce enough of it leaving us with that sluggish exhaustion.  I have been taking it for almost a year now and it has become such a habit that I don't even think about it unless I run out and forgot to reorder.  Today would be one of those days.  I can really tell the difference when I don't take it.  The website is Corvalen.com.  It has been featured in magazines and you can find copies of those articles under the media section.  I actually heard about it in Woman's World. 
I find that when I eat whole foods (ie no fat free, sugar free, processed convenience foods) I feel better.  Refined sugar also causes pain.  As soon as I finish a can of pepsi I get all achy.  I also can't eat any sugar substitutes because they give me headaches. 
You mentioned you have a lack of appetite.  Have you tried drinking a good whey protein shake in the morning?  Just to give you some nutrients and get your day started.
everyone responds differently to treatments and I have learned that fibro is a "try & see" type of condition.
I hope you can find some helpful info & support here
Have a great day!
Kristy :o)                                                                                         

by Brijen17 on Oct 21, 2008 at 11:16 am

Kristy,
Thanks for the welcome!  And yes, I do have quite the crazy-busy lifestyle!
I will definitely look into Corvalen.  I've found that when I'm down to a certain weight-range, working out 5-6 days a week, and stretching daily, my symptoms are less bothersome.  I also have to be very conscious about what I eat as I have food allergies and sensitivities in addition to the ever-obnoxious IBS many of us suffer from.  One major thing I'm allergic to is corn syrup, so cutting that out of my diet has been a major help!  It severely limits the amount of processed foods I can eat (which I'm not a fan of anyway), but it does make it hard to buy some staples, like breads.
I did have to stop using Splenda (tears!) as it was bothering me across the board; Sweet N Low hasn't bothered me thus far, so I'm crossing my fingers there.
I do actually drink a protein shake in the morning!  It's so funny you said that!  The loss of appetite is from the Mono, so I've just been making myself drink a protein shake in the morning (or eat a couple eggs), and then something again in the evening after work.  I haven't been hungry during the day yet since I got sick, so chicken bouillon has been my best friend!
Thanks again!
Brianna =)

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